I was almost prepared, the story of my life, for Passover. I found some lamb at Costco about 3 weeks ago. A friend, Julie, found some matza and so on... We were all prepared to have a nice family Seder together. We still had to remove the leaven for the Feast of Unleavened Bread, but all was on track. Then on Thursday night Stephenie's nurse told us Stephenie's oxygen levels were not staying up.
Normal oxygen levels for Stephe. when she is awake, range from 94 - 98. 100 is perfect and she reaches perfection sometimes when she is asleep and on oxygen. When she is asleep her oxygen levels usually fall into the 80's. On Thursday night her oxygen level was 82 awake and on oxygen. Was made all the phone calls and talked to the Dr. via the nurse. We are now at the hospital trying to figure out what is going on.
Her blood work is fine, other than the low oxygen. She has been swabbed for flu, I did not know one could be swabbed for flu, negative on the flu. She has been checked for other viruses like RSV. All negative. Her lungs have been x-rayed, no pneumonia, lungs clear. They did a cath. to check for a urinary tract infection, UTI, negative, more blood work ...more negative results.
At about 12:45 they finally got her formula up to the room so she is now finally eating. (She usually starts eating about 8:00 am.) She has been sleeping all day long which is not normal and her temp is about 99ish. The doctor has not been in yet so I am not sure what they plan on doing next.
Mark, my sweetheart, brought computer in for me last night. (Thank you Sweetheart!!) So, I should be able to keep you all informed without having to contend with hospital laptops and low batteries.
I am doing just fine and am going to try to add another installment to Stephenie's history for you all later today.
1:40 the Dr. just came in. No new news. All tests are looking fine. She wants us to stay so she can keep an eye on Stephe. She asked me what my take was on staying. I told her that as far as I was concerned they were not doing anything that we couldn't do from home. The doctor wanted to confer with one of Stephenie's other doctors, her lung doctor actually. I'm still waiting to hear what he thinks. 2:25pm.
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Teresa, Thanks for emailing me back. It looks like you have your hands full. The girls pic on here are beautiful. I was still looking for those little bitty kids that I knew. They have all grown into young ladies and a handsome young man. I read that 3 of them have the cystic fibrosis. You must have found that out latter on. Stepenie is beautiful also. I know she is a blessing to you and Mark as well. I think you have to be be super woman to handle everything health wise plus be a homeschool mom. I am so glad you wrote back and we will stay in touch. God bless you and your precious family - Sherry
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